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Preventing Ehlers-Danlos Syndrome (EDS)

There is no known way to prevent EDS once a person is born. If you have EDS or have a family history of the disorder, you can talk to a genetic counselor when deciding to have children.

RESOURCES:

Ehlers-Danlos National Foundation
http://www.ednf.org

National Institute of Arthritis and Musculoskeletal and Skin Diseases
http://www.niams.nih.gov

National Organization for Rare Disorders Inc
http://www.rarediseases.org

CANADIAN RESOURCES:

The Arthritis Society
http://www.arthritis.ca

The Canadian Ehlers-Danlos Association
http://www.ehlersdanlos.ca/

References:

Harrison’s Principles of Internal Medicine . 16th ed. McGraw Hill; 2005.

Ehlers-Danlos Foundation website. Available at: http://www.ednf.org .

The Merck Manual of Medical Information . Simon and Schuster, Inc.; 2000.

National Institute of Arthritis and Musculoskeletal and Skin Diseases website. Available at: http://www.niams.nih.gov .

National Organization of Rare Disorders website. Available at: http://www.rarediseases.org .

Last reviewed November 2008 by Rosalyn Carson-DeWitt, MD

Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition.

Talk about it in the:
Ehlers-Danlos Syndrome (EDS) Support Group

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